Transforming Global Patient Associations: Leveraging Boston's Healthcare Ecosystem

An Initiative For Patient Associations Worldwide To Enhance Leadership, Advocacy, and Patient Engagement.

Through immersive experiences and strategic collaborations, this program equips participants with essential tools and strategies to amplify patient voices, drive positive change, and empower patients.

Expert-led sessions, interactive workshops, and networking opportunities promote the exchange of best practices, inspire innovation, and develop leadership within patient associations.

Virtual Phase

- Overview of the nonprofit sector in the United States.
- Understanding the role and importance of patient associations.
- Governance and organizational structure.
- Introduction to lobbying and advocacy in the US context.
- The impact of patient associations on healthcare policy.
- Strategies for effective advocacy campaigns.

- Developing communication strategies for patient associations.
- Social media, websites, and other digital platforms for outreach.
- Crafting compelling stories and engaging with the media.
Participants to share comprehensive information about their respective associations, including their missions, objectives, activities and challenges within their healthcare landscape.

- Introduction to the culture of volunteering in the United States.
- Strategies for effective volunteer recruitment and retention.
- Case studies of successful volunteer recognition.
- Different fundraising models utilized by US patient associations.
- Exploring grant opportunities and donor engagement.
- Developing sustainable revenue streams and diversification

Boston In-Person Phase

Day 1

- Welcome session and program orientation.
- Visits to prominent patient associations in Boston.
- Engaging with their staff and volunteers to learn about their operations and best practices.

Day 2

- Analysis of successful patient associations in the U.S.
- Learning from their experiences, challenges, and accomplishments.
- Identifying transferable lessons and actionable insights.
- Office hours with representatives from patient associations in the Boston area.

Day 3

- Roundtable discussions on specific challenges and opportunities faced by the participant patient associations.
- Facilitated group discussions to share experiences, exchange ideas, and foster collaboration.

Day 4

Participants showcase their learnings, action plans, and visionary proposals. This culminating event features insightful feedback and evaluations from both experts and peers, ensuring each participant leaves enriched and empowered. We conclude with a heartfelt farewell event, celebrating our collective journey and the impactful connections forged.